The need for home-based palliative care among patients with stroke and their families: A phenomenological study

Abstract

Identifying the problems faced by stroke patients is crucial due to their diverse and complex nature. Attention to family issues is also essential, as the primary focus of palliative care encompasses both the patient and their family. This study aims to explore the challenges experienced by stroke patients and their families who require home-based palliative care in Yogyakarta. A qualitative design with a descriptive phenomenological approach was employed. Ten family participants were involved in this study, selected through purposive sampling from the homecare unit of Dr. Sardjito Hospital, Yogyakarta. Data collection methods included interviews and observations until data saturation was achieved. The transcripts were analyzed using Colaizzi's method, which involves seven stages. Six themes emerged, describing the problems of patients and families: physical problems, psychological issues, social disorders, cognitive impairments, spiritual difficulties, and financial challenges. These findings illustrate the complex nature of the problems faced by stroke patients and their families. Healthcare providers are encouraged to deliver palliative care that addresses these multifaceted issues. Future research should explore the barriers and challenges in providing palliative care, with a particular focus on the specific problems of patients and their families.

Keywords: Nursing care; qualitative study; phenomenological research; stroke care; family managemanet